This is Henry's good bye outfit! Off we go- Going home
Friday, September 4, 2009
Thursday, September 3, 2009
Surgery Done...
About an hour after we found out what was going on with Mr. Henry, the Children's Hospital surgery team came to us to ask if they could go ahead and start his surgery. I hadn't even talked to my mother!!! But what needed to be done, needed to be done, so we signed consent papers and off he went.
The procedure was quick and easy. It took about 30 minutes from roll in, to roll out. They put one small hole near his right hip for a tool, one hole near his left hip for a tool, and then a hole in his belly button for a camera. No incision! So, healing process is minimal. And follow up care pretty much takes care of itself. The holes have this tape over them, and when the tape falls off-He is healed!! So, that's all great news.
This morning we have had a bit of a problem getting him to seem interested in eating, but I dont blame him. He did eat earlier and it came back up, but that is from his stomach being so inflamed. Bottle # 2 (1.5 oz.) just went down, and it seems to be sitting better. As soon as Henry can keep down 2 bottles (2 oz.) in a row, we are discharged. I'm not rushing him today---- BUT I sure do miss my daughter. If he wants to save himself a spanking later; he may want to perform by tomorrow! ha ha
I hope that I didn't rush through this section, and everyone understands what has gone on. If not- Well, Ill try to type better next time.
Go Rambo!
Wednesday, September 2, 2009
For once- we have an ANSWER!!!
Pyloric Stenosis-
Thats what it is! Surgery will be scheduled here shortly. I will update you to let you know when.
Thats what it is! Surgery will be scheduled here shortly. I will update you to let you know when.
If its not one thing....
Its another. Bless the baby's heart.
I'm sorry that I have not been able to update. My partner in crime (my laptop) has been at home and Ive been at the hospital.
The new story~~~
The weekend was great!! I had my family together in one house. I Got to spend time with my daughter and son at the same time! I needed that so badly. Everyone was eating and drinking and being merry. Friday and Saturday were fabulous! It was like a dream.
Sunday morning at around midnight or 1:00 I noticed that I had run out of the formula that the hospital sent home with us. It was enfamil LIPL 24 cal. plus iron. (mouthful I know). I had told the hospital that I had my other child on Simulac and they said, "That's Great! Its the exact same thing." I was happy to hear, but with my past battle with Josie's formula war, I knew better. I knew that switching formula would have at least a tiny effect on the stomach.
SO ANYWAYS- Back to midnight--- I mixed a bottle of the Simulac and hoped for the best. At around 3, I noticed that little man's bed had some spit up on it. I cleaned it up, and gave the next bottle and just made sure to get a good burp out, and laid him back down at an incline. At 6:00, the bed was covered in vomit.
"Geeze" Just as i expected. Formula switches never go smooth. But, I thought that if I would keep trying, his belly would adapt. Sometime after noon on Sunday, I decided to go to the store and get what the hospital had him on, and try to get him back in business. So I sent Kent to get it. To find out--- Enfamil doesn't make that formula for the general public. You cant even order it. You can get ALMOST the same thing, but only 20 Cal's, not 24. (That's calories by the way). So we got the closest thing that we could find, and the vomiting continued. Actually, every feeding, the vomiting really got worse. I started to worry about him keeping his seizure meds down.
The little man still looked good, still had energy, and didn't seem sick. So I waited it out.
Finally, Monday night at 6:00 pm we decided that it was time to get to the ER and make sure little dude isn't dehydrated. After 5 or 6 attempts to stick him and get an IV running, and 6 HOURS they just decided to see how well he can hold a bottle down.
"WHAT THE HELL AM I HERE FOR??????" I could of done this at home, and been asleep by now. We were infuriated. Kent put the baby in the car seat, and we were headed out. BUT- then all of the "What Ifs" went through our head. We shut up, sat down, and gave the boy a bottle. Of course, as we said and expected, he vomited it up. This was the worst vomit episode that I have seen. He kept going and going and going. Where did all of this come from? He has only had 2 ounces in like 6 hours! Henry Kent was the exorcist. And Allison Renee was IRATE!! "Someone get a *^#%ing Doctor!!" I had to leave the room before I was removed from the hospital.
Finally, at 5 AM they got an IV running through his head, and up to a room we went.
The next morning at 9, they tried another bottle. No such luck. Vomit-
For the rest of the day, he still would push up part of that 9:00 feeding. Thoughts of a virus went through doctors minds, x-rays of his stomach showed that all parts were in the right place, and his vitals were good, so this doesn't seem to be a virus. "AHHHHH- Do I live in the Land of UNKNOWN??? Someone Help Us!" So the doctors decide to give his stomach a break, and go overnight without food. The next plan of action is to try Clear liquids, at 9am the next morning.
SO- here I am, it is the next morning now (Wednesday 8:22AM)
He just vomited AGAIN! What is left? I don't know. He has had nothing in 24 hours. Of course he vomited all over me when I was picking him up. all down my side and really alot under my arm. I changed shirts, but saved the vomit so that the doctor could see the consistency, color, and smell of it. (Lunch anyone? ha) Of course the first person right through the door was my intern. Very nice looking, Asian man. I like Asian men! He of course wants to study the vomit, and starts smelling the armpit of my shirt. I become a little nervous knowing how clean I am, and how often i have been showering here at the hospital (wink *), and he raises his eyebrows, and says...... "So, your a Downy girl?"
Good to know it didn't smell bad. Right!?! So now, the 9:00 feeding is canceled until further notice.
The next thing that he asked me, is if Pyloric Stenosis runs in either of our family's. This is when there is a tube in your belly that delivers food to your stomach is swollen on the inside, and blocks food from dumping into your stomach. This usually occurs when baby's are 3 to 4 weeks old. (He is.) Yes! Kent's sister had this as a baby. It is fixed with a quick surgery that is very easy and heals fast. Not saying that this is the problem, but we are going to be looking into it very hard today. We are going to have a stomach ultrasound hopefully today that can tell us if we have this problem. To learn more about this, look at this website- http://health.yahoo.com/digestive-overview/pyloric-stenosis-topic-overview/healthwise--hw180920.html
I will keep you updated now that I have my WONDERFUL computer, I can live again. Thanks for everything. Keep up on your prayers! Love-
I'm sorry that I have not been able to update. My partner in crime (my laptop) has been at home and Ive been at the hospital.
The new story~~~
The weekend was great!! I had my family together in one house. I Got to spend time with my daughter and son at the same time! I needed that so badly. Everyone was eating and drinking and being merry. Friday and Saturday were fabulous! It was like a dream.
Sunday morning at around midnight or 1:00 I noticed that I had run out of the formula that the hospital sent home with us. It was enfamil LIPL 24 cal. plus iron. (mouthful I know). I had told the hospital that I had my other child on Simulac and they said, "That's Great! Its the exact same thing." I was happy to hear, but with my past battle with Josie's formula war, I knew better. I knew that switching formula would have at least a tiny effect on the stomach.
SO ANYWAYS- Back to midnight--- I mixed a bottle of the Simulac and hoped for the best. At around 3, I noticed that little man's bed had some spit up on it. I cleaned it up, and gave the next bottle and just made sure to get a good burp out, and laid him back down at an incline. At 6:00, the bed was covered in vomit.
"Geeze" Just as i expected. Formula switches never go smooth. But, I thought that if I would keep trying, his belly would adapt. Sometime after noon on Sunday, I decided to go to the store and get what the hospital had him on, and try to get him back in business. So I sent Kent to get it. To find out--- Enfamil doesn't make that formula for the general public. You cant even order it. You can get ALMOST the same thing, but only 20 Cal's, not 24. (That's calories by the way). So we got the closest thing that we could find, and the vomiting continued. Actually, every feeding, the vomiting really got worse. I started to worry about him keeping his seizure meds down.
The little man still looked good, still had energy, and didn't seem sick. So I waited it out.
Finally, Monday night at 6:00 pm we decided that it was time to get to the ER and make sure little dude isn't dehydrated. After 5 or 6 attempts to stick him and get an IV running, and 6 HOURS they just decided to see how well he can hold a bottle down.
"WHAT THE HELL AM I HERE FOR??????" I could of done this at home, and been asleep by now. We were infuriated. Kent put the baby in the car seat, and we were headed out. BUT- then all of the "What Ifs" went through our head. We shut up, sat down, and gave the boy a bottle. Of course, as we said and expected, he vomited it up. This was the worst vomit episode that I have seen. He kept going and going and going. Where did all of this come from? He has only had 2 ounces in like 6 hours! Henry Kent was the exorcist. And Allison Renee was IRATE!! "Someone get a *^#%ing Doctor!!" I had to leave the room before I was removed from the hospital.
Finally, at 5 AM they got an IV running through his head, and up to a room we went.
The next morning at 9, they tried another bottle. No such luck. Vomit-
For the rest of the day, he still would push up part of that 9:00 feeding. Thoughts of a virus went through doctors minds, x-rays of his stomach showed that all parts were in the right place, and his vitals were good, so this doesn't seem to be a virus. "AHHHHH- Do I live in the Land of UNKNOWN??? Someone Help Us!" So the doctors decide to give his stomach a break, and go overnight without food. The next plan of action is to try Clear liquids, at 9am the next morning.
SO- here I am, it is the next morning now (Wednesday 8:22AM)
He just vomited AGAIN! What is left? I don't know. He has had nothing in 24 hours. Of course he vomited all over me when I was picking him up. all down my side and really alot under my arm. I changed shirts, but saved the vomit so that the doctor could see the consistency, color, and smell of it. (Lunch anyone? ha) Of course the first person right through the door was my intern. Very nice looking, Asian man. I like Asian men! He of course wants to study the vomit, and starts smelling the armpit of my shirt. I become a little nervous knowing how clean I am, and how often i have been showering here at the hospital (wink *), and he raises his eyebrows, and says...... "So, your a Downy girl?"
Good to know it didn't smell bad. Right!?! So now, the 9:00 feeding is canceled until further notice.
The next thing that he asked me, is if Pyloric Stenosis runs in either of our family's. This is when there is a tube in your belly that delivers food to your stomach is swollen on the inside, and blocks food from dumping into your stomach. This usually occurs when baby's are 3 to 4 weeks old. (He is.) Yes! Kent's sister had this as a baby. It is fixed with a quick surgery that is very easy and heals fast. Not saying that this is the problem, but we are going to be looking into it very hard today. We are going to have a stomach ultrasound hopefully today that can tell us if we have this problem. To learn more about this, look at this website- http://health.yahoo.com/digestive-overview/pyloric-stenosis-topic-overview/healthwise--hw180920.html
I will keep you updated now that I have my WONDERFUL computer, I can live again. Thanks for everything. Keep up on your prayers! Love-
Friday, August 28, 2009
CHUG-A-LUG CHUG-A-LUG-
Its 6:50 Am, and at 9:00 we have officially bottle fed for 24 solid hours. He is doing great. Taking 2 ounces of thickened formula every three hours. He is starting to wake me up now to feed instead of me waking him and force feeding. All this is great news. When the doctor comes around this morning she will read his chart and see that all his feedings went well. THEN- she orders the feeding tube to come out. That's what she said yesterday. I'm not sure if we have to be observed for another 24 hours after the tube is removed, or not. We will see.
Henry has gotten so much more energy through bottle feeding, and all around becoming an older baby. After all- He is a whole 2 Weeks old TODAY!! He also has been much more vocal. He mainly sleeps if he is not getting a diaper change or eating. But- From time to time he will wake up and cry for his pacifier. He loves it.
I don't have much more news for you today- That's great! No news is nice to report these days. OH- I almost forgot- If anyone knows of a speech therapist, let me know. I know that I do someones hair that is, but I'm having a hard time remembering who. So- If your reading, I'm sorry, but I would like to chat about a second opinion on this swallow study. Not that I am trying to take short cuts. I just don't connect well with the therapist/doctor that he is with, and may want to do follow up appointments elsewhere.
Hopefully home is in the near future. I'm still crossing my fingers for today, afternoonish- But i bet its tomorrow. Ive already got the double stroller popped out in the garage ready for walking. I cant wait!!! Josie's birthday is next month and I have some major 1st birthday party planning between now and then. So get your party panties on.. He will be a month and Josie will be a year- That's some serious stuff! ha ha-
Ill update on our discharge later. Wish us luck-----
Love- The Summers
Henry has gotten so much more energy through bottle feeding, and all around becoming an older baby. After all- He is a whole 2 Weeks old TODAY!! He also has been much more vocal. He mainly sleeps if he is not getting a diaper change or eating. But- From time to time he will wake up and cry for his pacifier. He loves it.
I don't have much more news for you today- That's great! No news is nice to report these days. OH- I almost forgot- If anyone knows of a speech therapist, let me know. I know that I do someones hair that is, but I'm having a hard time remembering who. So- If your reading, I'm sorry, but I would like to chat about a second opinion on this swallow study. Not that I am trying to take short cuts. I just don't connect well with the therapist/doctor that he is with, and may want to do follow up appointments elsewhere.
Hopefully home is in the near future. I'm still crossing my fingers for today, afternoonish- But i bet its tomorrow. Ive already got the double stroller popped out in the garage ready for walking. I cant wait!!! Josie's birthday is next month and I have some major 1st birthday party planning between now and then. So get your party panties on.. He will be a month and Josie will be a year- That's some serious stuff! ha ha-
Ill update on our discharge later. Wish us luck-----
Love- The Summers
Thursday, August 27, 2009
After some mind clearing..
I'm sorry that I never updated yesterday. I needed a little attitude adjustment before speaking to the entire world. I am better now and have had some time to accept some things that are not a huge deal.
At the swallow test.... Henry did wonderful. I felt like he was latching on and not loosing too much liquid out of his mouth. The doctor had me holding the bottle and feed him different consistencies of liquid while they took an X-ray video of his swallowing skills. The doctor kept saying, "Oh, not good! We had penetration..", and "Oops, there he has done it again." By the looks to me, he was doing great. But hearing all of this from the doctor, and not knowing what it was saying- gave me a slight panic attack. I started to sweat, then my hand started shaking, and soon I was totally blacking out. I had to tell the doctor that I needed to get out of the room.
After the study was done, she explained to me that Henry is not 100% coordinated at his eating skills. That he almost got the liquid into his airwaves. That can cause silent aspiration, and that can get fluid into your lungs. SO- they recommended leaving in the feeding tube and doing every other feeding by bottle using a thickener called "thick it" to make it easier for Henry to direct the fluid down his throat. Then doing the other feedings through the feeding tube.
So- after hearing this news, to be honest I was PISSED. In my mind this was an entire new problem that has been addressed outside of the true reason that we are here in the first place. And not that I'm trying to rush Henry's progress, but this could prolong our stay here. This was my thought process yesterday.
BUT- as the evening went on, Henry did great at all of his feedings. At 9:00 this morning, the doctor met us in our room to observe Henry's feeding. He did great. Her instruction to us today is to feed every feeding by bottle and see how he handles that. She will be back for his noon feeding to see how he follows up with 2 bottles in a row. If all goes well, we will have this horrible feeding tube out in no time.
Keep your fingers crossed at noon today!
At the swallow test.... Henry did wonderful. I felt like he was latching on and not loosing too much liquid out of his mouth. The doctor had me holding the bottle and feed him different consistencies of liquid while they took an X-ray video of his swallowing skills. The doctor kept saying, "Oh, not good! We had penetration..", and "Oops, there he has done it again." By the looks to me, he was doing great. But hearing all of this from the doctor, and not knowing what it was saying- gave me a slight panic attack. I started to sweat, then my hand started shaking, and soon I was totally blacking out. I had to tell the doctor that I needed to get out of the room.
After the study was done, she explained to me that Henry is not 100% coordinated at his eating skills. That he almost got the liquid into his airwaves. That can cause silent aspiration, and that can get fluid into your lungs. SO- they recommended leaving in the feeding tube and doing every other feeding by bottle using a thickener called "thick it" to make it easier for Henry to direct the fluid down his throat. Then doing the other feedings through the feeding tube.
So- after hearing this news, to be honest I was PISSED. In my mind this was an entire new problem that has been addressed outside of the true reason that we are here in the first place. And not that I'm trying to rush Henry's progress, but this could prolong our stay here. This was my thought process yesterday.
BUT- as the evening went on, Henry did great at all of his feedings. At 9:00 this morning, the doctor met us in our room to observe Henry's feeding. He did great. Her instruction to us today is to feed every feeding by bottle and see how he handles that. She will be back for his noon feeding to see how he follows up with 2 bottles in a row. If all goes well, we will have this horrible feeding tube out in no time.
Keep your fingers crossed at noon today!
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