What had happened...

Ok- What has gone on- Tuesday night around 7PM Kent and I noticed that our little Henry was loosing intrest in eating. No big deal, just eating about half as much as he did the 4 other days of his life. This lasted all night. Through the middle of the night, he cried and cried and cried. The first thing that I thought was---"Great, God thought I deserved another Josie in my life." HA- Kent said that he had noticed some odd breathing patterns durrning the night, and still no intrest in eatting. In the morning, I tried to do some floor activities with him and josie to see if he had any intrest in moving around. THIS is when i saw that we had a problem. He was totally limp and his eyes were lifeless and clear. Just looking odd. I called the doctor. I scheduled a doctors appointment and really didnt know what to report. "I need an appointment for my son who looks diffrent in the eyes today."---- Sounds weird. Anyways, just a few minutes after, Henry started a rythmic twitching. I thought it was a little odd, but it just looked like newborn movements. This lasted for a while and thats what made me a tad nervous. I grabbed my video camera and filmed his actions. I knew as soon as I got him to the doctor that I wouldnt be able to explain what he had been doing. Right before I loaded him up into the car- I saw Henry loose pretty much all coloring. His body turned grey, face lips and tounge turned blue, and his little hands were blue as well. At the doctors office he had a eppisode of color change infront of a nurse, but when the doctor got there, he did much better. As soon as I showed him the video he started talking about some serious actions we needed to take. After some small talk, he decided to get Henry sent over to the hospital for some immediate attention while we wait on Childrens hospital to come get him. So, thats what we did. At the hospital he had a couple more eppisodes of breathlessness, witch is what caused the color change. But no ceazure like activity like seen on my video. Now at Childrens Hospital. --------- We got here and finally got an IV running through the baby. He hadnt eaten in so long, he was very weak. At this point so many tests had already been run from his urine, blood, and anything else they could get from him. All tests came back negative. They went ahead and started treating him for viral and bacteria issues that could be possible. Next- they wanted to give him a chest x-ray. This came back and all possible heart problems seemed to be rulled out. Next was a head ultrasound. Although you cant see much from this, its quisck and easy and came back looking good. Then, we had a spinal tap. This has tons of rusults witch we wont know for afew more days, but most importantly, it told us almost imediatly that he did not have meningitis. Thats good! Later that night- after Henry was on seizure meds and hooked up to an E.G.G that reads his brain waves, he seemed to be stable for the night. He was breathing well on his own and no sign of seizure. This shortly took a turn. He started having moments that he didnt breath for a few seconds (the doctors say this is pretty normal for newborns), but one time it lasted a little bit too long for comfort. They felt like a ventalator would better regulate his breathing so that he didnt have to work so hard. So they had to give him some drugs that pretty well knocked him out and inserted his tube. The next morning, up until the evening there were some worries that he had not recovered from his medication. He had no movement, and had not really tried to breath on his own yet. Around 5ish he began to do some moving. Arms and legs and lips. That made us feel better. He was scheduled to do an MRI to better look at his brain. While waiting the day away for him to go to his MRI, we talked to all of his doctors. The information that we got was...... - So far our condition has not gotten worse. We are creating a base of information that helps us rule some things out 1 by 1. -- There is some fluid from the spinal tap that came back not clear. This could be something as slight as blood that was caused by birth trama, and this can cause ceizure activity, but goes away quickly. OR it could be some sort of bacteria. The MRI should tell us more on that. --- Anything viral has been rulled out, so he has been taken off of that medication.--- The doctors are not as worrid about his comming off of the medicine as the nurses. They said that they wouldnt of expected him to be any diffrent. THAT MADE US FEEL SO MUCH BETTER> AS OF RIGHT NOW- Henry just got back from his MRI, that went well. They did have to give him a slight something to relax him because of his movements picking back up. But I can already see that wearing off. So- next thing on the list is to let the Nurologist look at his MRI results and see what he thinks needs to be done next. Until then- We will kiss his face, hold his little hands, and pray for his little self. Im sure that I have left out so much information. My head is all over the place. I will try to keep you informed via this website, so if I dont answer your phone calls, this is where to get an update. Kent has been the best dad in the world and an even better husband. He has held my hand and Henry's the whole time. WE WILL BE OK> We may not have answers right now, or even know where to go next. But we are here and have each other. Our family is awesome and I appreciate everything that everyone has done. I will update soon. Josie and I are going home together tonight and giving her Nonna a break. Kent will be here to see all that is going on. I will give you more info as soon as I know anything. Keep us and Henry in your prayers. Goodnight. ps- Im sorry for my spelling- the computer here in the room wont let me use spell check-- And im horrible. so sorry!