What went on today- (Friday)

The doctor (neurologist) came back in today to talk to us about any info that he has found about the damage. There are all types of terms that I could throw at you, but if your like me- it sounds like foreign language. So I'm just going to report in "normal people talk" the best that I can.
The damage that has happened is NORMALLY something that happens during birth when there are difficulties. Something like very low blood pressure or lac of oxygen to the brain causes this. In our case, there was too much "normal" time after birth for this to be the case. So- it must have happened sometime at home. But not after the seizure. He thinks that the seizure and color change was caused by this slight stroke type of event. The tests show lots of "white matter" around his brain. This is the damaged area. It also showed lots of swelling. From my understanding, the swelling is/could be causing a lot of problems and preventing us from seeing what all is really going on. They plan on another MRI in a few months after all swelling is gone. The doctor explained it to me like- "If i were to rare back and slap you so hard across the face you would see a big red whelp where my hand hit. After a little while, when the red goes away you may be able to see if it left a bruise." That made good sense to me. I hope it helps you.
LOOKING AT STATISTICS, the areas that have been harmed seem to affect more of the physical being than mental. Things like movements and such. But none of that is 100%. There is a small chance that nothing ends up being wrong, or at least noticed. And then again, there is a chance that Henry could be very handicapped. Everything is still up in the air. The doc said that he has seen MRIs come back looking way worse and the patient being just fine, to MRIs looking great and the patient in horrible shape. Its all waiting game.
Henry had to get back on a more monitored setting on his vent. He has had some troubles initiating his own breaths in a rhythmic fashion. The doc thinks that this too is caused by the brain being irritated by the swelling.
Also, they changed the medication that he has been on for the seizures. I'm not sure of the name, but it is less sedating than what he has been on. This should/could also help his breathing.

IF- anyone thinks of any good questions that I should ask the doctor, let me know. Email me, or comment me here on this. If i have it in writing i wont forget to ask, but if I just think about it- its out the window by the time i see the doctor.

Our next action- Just getting the boy to pick up on his breaths, heal from swelling, and eventually get off of the ventilator. I think that all other things will have to be taken care of and learned more about over quite a bit of time.

As far as our sweet baby girl goes---- She has been very taken care of. She has been up a couple of times and spent some time in the waiting room playing with everyone. She has spent her days at her Ganny's and nights at her Nonna's. For the past 2 nights I have been home with her myself and Kent has been staying the night at the hospital. Its so hard for 2 to sleep there. I'm sure Ill stay there tomorrow night and let Kent snuggle with his little tatter! (Josie's nick-name) .

MRI Results

Not so great. The doctor noticed some damage to the brain. He is not sure of the extent of it yet, or how it will affect Henry, but he and the neuroligist will meet with the doctor to find out more. They are not sure of when the damage came about, if it caused the ceizure activity, or if the ceizure caused the damage. Same with the color changing- was that a cause or an effect? Im not quite sure what else to say- We are keeping our chins up and our thoughts positive. No matter what happens, we will be the Summers family of 4, and our home will have lots of love and happy times in it. As far as other things that have gone on--- His ventalater has been turned down so that he can do some breathing on his own, his leads have been removed from his head (brain wave readers), and a feeding tube has gone into his nose. So now he is getting real calories and not just fluid. The doctor should be in to talk to us sometime today before 5. I will update then.